Memoir-in-Progress

In 2005 I realized I looked like a bodybuilder. Without weight training, my muscles were growing out of control. I’m writing the story of a hunt for answers, a hunt that got more and more urgent and that hit more and more obstacles. I finally hit a dead end when I realized that the condition would likely kill me soon if I couldn’t find a diagnosis and treatment. My long brush with death changed me and gave me a fuller life. I wish I’d gotten the good parts of my medical journey years before – and without the costs of the journey itself. Bits of my story appeared on “AC 360” in 2010 and on “60 Minutes” in 2012.

To learn more about my disease, visit my resource page.